HUNTER ICU SUPPORT GROUP
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Patient Resources

Expert information and support for your recovery journey.

Strength, Weight & Expectations

Muscle loss and fatigue are common after critical illness, particularly if you required a ventilator. It is important to understand that full recovery is a marathon, not a sprint—it can take 12 to 18 months to truly feel like yourself again.

The 18-Month Window

Progress may feel slow. Tracking small wins weekly helps maintain motivation when the timeline feels long.

Goal Setting

Set achievable goals, like walking to the end of the garden, to rebuild strength gradually without overexertion.

Respiratory & Vocal Changes

If you had a tracheostomy, the scar will fade over time, but the internal healing takes priority. Your voice may also sound different or feel weak initially.

  • Lung Health: Continue your breathing exercises to strengthen your lungs and prevent secondary infections.
  • Voice Care: Avoid straining your voice. Stay well-hydrated to help vocal cord recovery.
  • Quit Smoking: Post-ICU lungs are vulnerable. Smoking now can cause permanent damage. Support is available at 0800 022 4332.

External & Sensory Changes

Prolonged illness affects the body’s "outer" systems and sensory processing:

Skin & Hair

Moisturize for itchy/dry skin. Temporary hair loss or texture changes are common but usually reversible.

Bruising

Marks from IV lines and injections on arms or abdomen are normal and will fade.

Senses

Metallic tastes or skin tingling are often medication side effects that lessen with time.

Bladder & Bowel Health

If a urinary catheter was used, you might experience weakened control or urgency initially. This is a common part of the "re-training" your body goes through.

Note: If you experience pain when urinating or persistent trouble going, consult your GP to rule out a post-catheter infection.

Getting Started
Track Progress

Keep a small recovery journal. On days when you feel "stuck," looking back at your first week home can show you how far you've actually come.

Need Support?

Physical changes can be frustrating. Don't hesitate to contact your rehabilitation coordinator if you feel your progress has stalled.